Bibliography


Assigned readings:

Beverley, C.A., Bath, P.A. & Barber, R. (2007). Can two established information models explain the information behaviour of visually impaired people seeking health and social care information? Journal of Documentation, 63 (1): 9-32.

Eysenbach, G & Kohler, C. (2002). How do consumers search for and appraise health information on the World Wide Web? Qualitative study using focus groups, usability tests, and in-depth interviews. British Medical Journal, 324, 7337, 573-577.

Fisher, K. E. (2005). Information grounds. In Fisher, K. E., Erdelez, S. & McKechnie, L. (Eds.), Theories of information behavior (pp.185-190). Medford, NJ: Information Today, Inc.

Miller, G. (Producer/Director) & Mitchell, D. (Producer). 1992. Lorenzo’s oil [Motion picture]. USA: Universal Pictures.

Pettigrew, K. E. (1999). Waiting for chiropody: contextual results from an ethnographic study of the information behavior among attendees at community clinics. Information Processing and Management, 35, 801-817.

Todd, R. J. (1999). Utilization of heroin information by adolescent girls in Australia: A cognitive analysis. Journal of the American Society for Information Science, 50, 10-23.

Warren, J., Kvasny, L., Hecht, M., Burgess, D., Ahluwalia, J.S., & Okuyemi, K. S. (2010). Barriers, control and identity in health information seeking among African American women. Journal of Health Disparities Research & Practice, 3 (3): 1- 45.


The Patient:

Balka, E., Krueger, G., Holmes, B.J., & Stephen, J. E. (2010) Situating internet use: Information-seeking among young women with breast cancer. Journal of Computer-Mediated Communication, 15(3): 389-411.

CBS News (2009, November 2). Webnosis world: Patients going online for medical information [Television series episode]. In CBS Early Show. CBS Healthwatch. Retrieved from http://www.cbsnews.com/video/watch/?id=5494170n

Czaja, R., Manfredi, C. & Price, J. (2003). The determinants and consequences of information seeking among cancer patients. Journal of Health Communication, 8: 529-563.
Han, J., Wise, M., Kim, E., Pingree, R., Hawkins, R., Pingree, S., McTavish, F., & Gustafson, D. (2010) Factors associated with use of interactive cancer communication system: An application of the comprehensive model of information seeking. Journal of Computer-Mediated Communication, 15: 367-388.

Niederdeppe, J., Frosch, D., & Hornik, R. (2008). Cancer news coverage and information seeking. Journal of Health Communications, 13: 181-199.


Salmon, P., Hall, D.P. and George (2004). Patient empowerment or the emperor’s new clothes. The Royal Society of Medicine, 97(2): 53-56.

Health Information Literacy:

AMA Foundation (2010, February 23). NW Geriatric Education Center. [Video file]. Retrieved from http://www.youtube.com/watch?v=7MoQTC-mxxM&feature=player_embedded#!
Andrulis, D.P., & Brach, C. (2007). Integrating literacy, culture, and language to improve health care quality for diverse populations. American Journal of Health Behavior, 31(Suppl 1), 122-133.

Kirsch, I.S., Jungeblut, A., Jenkins, L., Kolstad, A. (1993). Adult Literacy in America: A First Look at the Results of the National Adult Literacy Survey (NALS). Washington, DC: National Center for Education Statistics, U.S. Department of Education.

Kouame, G. (Author/Producer). (ND). Prescription: information! librarians working with health professionals to improve health information literacy . [Web]. Retrieved from http://mla.mrooms.org/course/view.php?id=27

McKinney, J. & Kurtz-Rossi, S.(2000). Culture, Health, and Literacy: A Guide to Health Education Materials for Adults With Limited English Skills. Boston, MA: World Education.

National Center for Education Statistics (2006). The Health Literacy of America's Adults: Results From the 2003 National Assessment of Adult Literacy. Washington, DC: U.S. Department of Education.
(source: http://www.health.gov/communication/literacy/quickguide/factsbasic.htm#six)

Neilsen-Bohlman, L., Panzer, A.M., & Kindig, D.A. (2004). Health literacy: a prescription to end confusion (online pdf), Retrieved from http://books.nap.edu/openbook.php?record_id=10883

Shipman, J. P., Kurtz-Rossi, S., & Funk, C.J. (2009). The Health Information Literacy Research Project. Journal of the Medical Library Association, 97(4), Retrieved from http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2759165/

U.S. Department of Health and Human Services. 2000. Healthy People 2010. Washington, DC: U.S. Government Printing Office. Originally developed for Ratzan SC, Parker RM. 2000. Introduction. In National Library of Medicine Current Bibliographies in Medicine: Health Literacy. Selden CR, Zorn M, Ratzan SC, Parker RM, Editors. NLM Pub. No. CBM 2000-1. Bethesda, MD: National Institutes of Health, U.S. Department of Health and Human Services.

U.S. Department of Health and Human Services. 2001. National Standards for Culturally and Linguistically Appropriate Services in Health Care. Washington, DC: Office of Minority Health.


Vargas, Karen (2005). "Teenagers, Health, and the Internet: How Information Professionals Can Reach Out to Teens and Their Health Information Needs". Journal of Consumer Health on the Internet, 9(3): 15-68.

Impact of Technology:

Eysenbach, G & Kohler, C. (2002). How do consumers search for and appraise health information on the World Wide Web? Qualitative study using focus groups, usability tests, and in-depth interviews. British Medical Journal, 324, 7337, 573-577.

IBM Advertising (2009, April 8). IBM commercial: Smarter healthcare solutions for a smarter planet [Video file]. Retrieved from http://www.youtube.com/watch?v=AEh6LStxY-I&feature=player_embedded#!

Keane, E. (2009). Evaluating consumer health information: What fails to harm us makes us smarter. The Reference Librarian, 50: 178-192.

mHealth Initiative Vision Statement (nd), http://www.mobih.org/.

Ratzan, M.D., M.P.H., Scott (2010). A Scorecard for Chronic Disease: Advancing Health Literacy Globally Among Key Audiences. Retrieved from http://www.c3health.org/wp-content/uploads/2010/04/Ratzan-Scorecard-20100419.pdf

Robins, D., Holmes, J. & Stansbury, M. (2010). Consumer health information on the web: The relationship of visual design and perceptions of credibility. Journal of the American Society for Information Science and Technology, 61(1): 13-29.
Rockwell, Norman. (1929). Doctor and the Doll. Retrieved July 8, 2010 from: http://www.allposters.com/-sp/doctor-and-v-doll-posters_i2110593_.htm.


Yen, S. (2010). Reputable but inaccurate: Reproductive health information for adolescents on the web. Knowledge Quest, 38(3): 62-5.

Media Depictions:


Fisher, K. E. (2005). Information grounds. In Fisher, K. E., Erdelez, S. & McKechnie, L. (Eds.), Theories of information behavior (pp.185-190). Medford, NJ: Information Today, Inc.

Lorenzos Oil (nd). Retrieved July 9, 2010 from: http://www.picsdiggers.com/domain/ol-bopy.blogspot.com/

Miller, G. (Producer/Director) & Mitchell, D. (Producer). 1992. Lorenzo’s oil [Motion picture]. USA: Universal Pictures.